Rare Disorders NZ offers a central starting point for patients and whānau affected by rare disorders. We help families, patients and healthcare providers navigate the health system and find information and support groups specific to their disorder.
As the only umbrella group representing all people living with a rare disorder in Aotearoa, we provide a strong, unified voice to advocate for public health policy and a future healthcare system that works for those with rare disorders.
We work with the Government, clinicians, researchers and industry to promote diagnosis, treatment, services and research.
We continue to advocate for a national framework for rare disorders in New Zealand.
