Rare Disorders New Zealand

Rare Disorders NZ is the respected voice of rare disorders in New Zealand, and is the only national organisation supporting all New Zealanders who live with a rare condition, and the people who care for them.

People with rare disorders, and their friends and family, advocate for change in relation to acknowledgement, support and assistance for sufferers of rare disorders in New Zealand.


Over 70 givers have collectively raised $24,273.03 for Rare Disorders New Zealand. That has provided a space for 300,000 people to turn to for advice, support and advocacy.

What We Do.

Rare Disorders NZ offers a central starting point for patients and whānau affected by rare disorders. We help families, patients and healthcare providers navigate the health system and find information and support groups specific to their disorder. 

As the only umbrella group representing all people living with a rare disorder in Aotearoa, we provide a strong, unified voice to advocate for public health policy and a future healthcare system that works for those with rare disorders. 

We work with the Government, clinicians, researchers and industry to promote diagnosis, treatment, services and research. 

We successfully advocated for a national Rare Disorders Strategy and we are now working to ensure changes are implemented in the health system from the Strategy that will make a meaningful difference to the 300,000 Kiwis living with a rare disorder.

Image of our sign up process, one of our stories and an example of a social media post.


As a giver we’ll never hassle you for more money, call you or send you envelopes in the mail.

How it Works

Choose your charities

We’ve partnered with 15 trusted Kiwi-based charities. Choose one, some, or all. Tell us how much you want to give and how often. Set up once, then we’ll do the rest. Easy!

100% to charity

When you donate to a charity via One Percent Collective, a dollar given is a dollar received. The charity gets 100% of your donations. We don't take a cut.

See your impact

We’ll make sure you know what your dollars are doing. The difference they're making, the lives they're changing, and the stories they're creating.*

Don't just take our word for it.

I like the cause, the simplicity, and the flexibility of One Percent Collective. Keep up the great work!

– Mel –
Giving monthly since 2018

One Percent Collective supports great charities and it helps me talk about giving back to my children in a meaningful way.

– Jimmy –
Giving monthly since 2015

I think the concept of One Percent Collective is so great. Thanks for making it all so easy!

– Bridget –
Giving monthly since 2020

It means a lot to see the impact all written out — quantified and qualified. Thanks so much for the incredible work you’ve been doing.

– Karen–
Giving monthly since 2014

Can I just say how much I love this kaupapa, and how happy I am to be supporting your mahi. You guys rock!

Giving monthly since 2021